View Full Version : My Baby Girl - Update
well we went to birmingham today and we saw robynns liver specialist, he is concerned about how jaundiced she is, so they are starting her on a course of steroids, in 2 weeks she will have some blood tests and if things haven't improved we have to go back to birmingham to discuss a liver transplant, if there is improvement she will continue on the steroids for 2 months and we will see where it goes from there either way we think a transplant will be sometime soon
Lazy-Ferret
03-04-2014, 23:21
I was waiting to find out how it went....
Looks like the decision on when she has to be operated on has been taken out of your hands... Lets just hope for a perfect doner ASAP. Fingers crossed.
makeitfit
03-04-2014, 23:28
Aye, best found sooner than later for all concerned.
Fingers crossed mate ;)
solarman216
03-04-2014, 23:39
Feel for you, best of luck, Rick
AlexD333
04-04-2014, 06:11
I was waiting to find out how it went....
Looks like the decision on when she has to be operated on has been taken out of your hands... Lets just hope for a perfect doner ASAP. Fingers crossed.
Plus one on this!
Wishing you the best of luck :)
Bigbunny2007
04-04-2014, 21:13
Stay positive and the best of luck to your daughter and family :thumb2
exosteve
04-04-2014, 21:26
this is a perfect plug spot.
please everyone on here and please encourage your friends too.
get online and join the donor list.
its easy just register online and donate the bits your not going to need anymore.
im on the list for all spares exept my eyes. what my eyes have seen stay mine I belive its a gate way to your soul.:augie
they can have the rest but my liver may not be too usefull with the abuse its had.
but come on peeps save some ones life,join the list.
with new technologie today as soon as we go they know they can save some bits just by typing your name in the list.
I am going to encourage my hole family join:thumbs
keep us upto date steve and I look forward to meeting you all in june:thumbs
this is a perfect plug spot.
please everyone on here and please encourage your friends too.
get online and join the donor list.
its easy just register online and donate the bits your not going to need anymore.
im on the list for all spares exept my eyes. what my eyes have seen stay mine I belive its a gate way to your soul.:augie
they can have the rest but my liver may not be too usefull with the abuse its had.
but come on peeps save some ones life,join the list.
with new technologie today as soon as we go they know they can save some bits just by typing your name in the list.
I am going to encourage my hole family join:thumbs
keep us upto date steve and I look forward to meeting you all in june:thumbs
its funny you should say that m8y, in wales they are bringing in an opt out system next year, so if you don't opt out you automatically become a donor when you die.
thankyou everyone for your well wishes, we think it would be better for her to have it done now while she's young as her recovery time will be a lot quicker, the operation can take 8hrs and then weeks in the hospital after for recovery, also the hospital are putting a claim in for us for disbility living thingy for robynn, its something we have never thought of but if we do get it the extra money will help with the extra visits to birmingham and in between those visits we have to goto cardiff, so now i have a mission to get the truck in tip top condition ready for when the day arrives :thumbs
Barrbeast
04-04-2014, 22:38
As said bud, fingers crossed, will be thinking of you all.
solarman216
04-04-2014, 22:43
Difficult subject this as religion seems to come in to it, so I will just state what I think, once you re dead you have no need of your body so I say put it up for those that need any bits that are useful, I cannot see whatever religion you are that this would make any difference, your body is just a husk that is now gone spirits and all that malarkey I leave to you all, Rick
firebobby
04-04-2014, 22:59
Difficult subject this as religion seems to come in to it, so I will just state what I think, once you re dead you have no need of your body so I say put it up for those that need any bits that are useful, I cannot see whatever religion you are that this would make any difference, your body is just a husk that is now gone spirits and all that malarkey I leave to you all, Rick
Totally agree
well we had the blood results back today and it doesn't look like the steroids are working, just have to wait to hear from the liver specialist in birmingham now
Yeah best of luck,its a heart wrenching time when one of your kids are ill.No matter how old they are.
As for donating bits of your body when its of no use to you.(Bit like recycling a old truck,to keep another going)
Lazy-Ferret
30-04-2014, 09:41
well we had the blood results back today and it doesn't look like the steroids are working, just have to wait to hear from the liver specialist in birmingham now
You did say you were not convinced that they were working and she was looking a bit yellow the day we saw you.
We will keep our fingers crossed that it all goes smoothly, and she gets exactly what she needs asap.
Best wishes to you all.
Terranical
30-04-2014, 10:09
Thoughts are with you bud, just keep positive! Re the "opt-out" scheme, should be rolled out across the country - I totally agree with Ricks' sentiments, when we're gone our bodies are of no use to us, so it seems criminal that the parts that could save other peoples' lives are simply buried or cremated.
Totally agree with the Opt out scheme. I have carried a donor card almost 40 years (from 18). Luckily I have not had to use it :confused:
All the best for your lass.
melissachels
01-05-2014, 21:04
its funny you should say that m8y, in wales they are bringing in an opt out system next year, so if you don't opt out you automatically become a donor when you die.
thankyou everyone for your well wishes, we think it would be better for her to have it done now while she's young as her recovery time will be a lot quicker, the operation can take 8hrs and then weeks in the hospital after for recovery, also the hospital are putting a claim in for us for disbility living thingy for robynn, its something we have never thought of but if we do get it the extra money will help with the extra visits to birmingham and in between those visits we have to goto cardiff, so now i have a mission to get the truck in tip top condition ready for when the day arrives :thumbs
we have an opt out system too, me & my kids are on donor list, including my eyes (i'll be able to watch how I helped the person), My daughter's cousin just done a kidney transport for his wee one, he's only 3. Hope something comes up soon.
firebobby
02-05-2014, 17:12
well we had the blood results back today and it doesn't look like the steroids are working, just have to wait to hear from the liver specialist in birmingham now
God mate, I hope it all works out for you, really do.
Best wishes to you all mate.
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