change.org

[solarman216]

My Mrs works as an escort,and loves the job, now I know what you are thinking but no not that kind of escort, she sits with special needs kids on taxi journeys one of her children lives in Eastbourne and spends two weeks at a time at a special school in Margate, as this is the closest unit that can cater for her needs, and it is threatened with closure, now change.org has got a petition going that I have just signed, they need another 5000 odd more to reach the magic number of 25000,

I know this is not 4 x 4 related but it is important to a fair number of kids that will be effected by this needless closure, so could I ask that those of you that are interested in this to please sign this petition, I am not sure about a link but will try.

[url]https://www.change.org/p/kent-county-council-save-the-royal-school-for-deaf-children-margate?[url]


if I am out of order on here for this then I am sure a mod will be along and slap my wrist, Rick

[johnb5177]

Don't care, signed.......

[paulp]

great cause - signed

good luck

[AlexD333]

Nothing out of order about this. I will share on the Facebook group too

Here's the hyperlink for you guys too.
https://www.change.org/p/kent-county...ldren-margate?

[makeitfit]

My wife looks after special needs too Then works as a teacher all day
Signed

[Blocky10]

Kin too right. Signed.
These children need these kind of places and people. Should be signing petitions to build more not to stop them closing.

Ian

[macabethiel]

I too have signed, my Grandson aged 10 years is a quadriplegic with cerebral palsy, his twin brother who was brain damaged at birth as a result of T.T.T.S has severe behavioural issues.

Luckily my Daughter lives in the Chester area so funding is not as bad as some areas.

[macabethiel]

Morgan and James - TTTS Survivors
Morgan and James , identical twins, were born on 20 September 2004 at 29 weeks 4 days gestation, having been diagnosed with twin to twin transfusion syndrome.Morgan sustained brain damage and was very seriously ill shortly after birth and now suffers from microcephaly and quadriplegic spastic cerebral palsy. He is fed almost exclusively via a gastrostomy. Morgan also suffers from epilepsy.James' post-delivery problems began with necrotising enterocolitis ('NEC'). He had various complications with his lungs, liver and intestines, and has been on the brink of death several times. In April 2005 we even discussed turning off his life support. Thankfully he survived, and after spending the first 13 months of his life in hospital, he finally came home on 19 October 2005. He lost a key window for learning to feed and had a gastrostomy for a while, but now feeds normally. James suffers from a milder form of epilepsy than Morgan, which is stable under medicinal control. His development is significantly delayed and we do not really know how he will progress educationally.The expenses of severely disabled children and those with special needs are many. Many toys, for example, are easily ten times as expensive. EasyFundraising helps us with some of those expenses.

[firebobby]

Signed also, thanks for the link Alex

[solarman216]

Thanks for the T.T.T.S. info, my wife and I fostered special needs for 24 years and had not come across that one, most of our 40 odd kids were mild to middling in their care needs, but a few were very high, meaning we had to enlist help to cope, one in particular meant we had to spend days at GOSH 24/7 to learn how to cope with her, we learnt recently she is still going at around 13 years old now, we had her from 6 months old until she was 2, and yes the costs in monetary terms are very high, we have many good memories of "our" kids, Rick

[firebobby]

Rick mate, you should write a book about your life, you have seen and done so much, good on you and Mrs Rick

[Dave_Askham]

signed.....

as I commented, drop less bombs and keep schools open with the money saved...

simple really if you ask me...

[Banshee]

Signed a few days ago

[Mr K]

Signed

We need more of these schools, not less.

[macabethiel]

Originally Posted by solarman216

Thanks for the T.T.T.S. info, my wife and I fostered special needs for 24 years and had not come across that one, most of our 40 odd kids were mild to middling in their care needs, but a few were very high, meaning we had to enlist help to cope, one in particular meant we had to spend days at GOSH 24/7 to learn how to cope with her, we learnt recently she is still going at around 13 years old now, we had her from 6 months old until she was 2, and yes the costs in monetary terms are very high, we have many good memories of "our" kids, Rick

I had never heard of T.T.T.S. until my Daughter was diagnosed with the condition part way through her pregnancy. When she went for a routine scan it was picked up that one twin was marginally larger than the other. They were identical twins so have a shared umbilical chord. Basically the twin nearest the placenta gets more blood flow and starts to develop faster. Survival for life being what it is causes the more distant twin to get a reduced blood supply from the mother so it steals some of the first twins blood by becoming parasitic. This leads to the twin nearer the placenta having to pump blood for its sibling causing heart problems and eventually brain damage. Morgan was born at around 22/23 weeks at Alder Hay Hospital in Liverpool, he weighed just over 2 lbs when he was born, his brother James was half his weight at around 1lb 3 ounces.

James has continued to surprise us as he learnt to swallow and had his gastonomy tube removed following a number of bowel operations. He now speaks whole sentences not just odd words and has learnt to walk and run. He feeds himself but sadly has severe behavioural development issues and has no concept of fear or cause and effect.
That said he is a lovely lad and has mastered his i-pad !