My Baby Girl - Update

R1cho · 03-04-2014, 23:06

well we went to birmingham today and we saw robynns liver specialist, he is concerned about how jaundiced she is, so they are starting her on a course of steroids, in 2 weeks she will have some blood tests and if things haven't improved we have to go back to birmingham to discuss a liver transplant, if there is improvement she will continue on the steroids for 2 months and we will see where it goes from there either way we think a transplant will be sometime soon

Lazy-Ferret · 03-04-2014, 23:21

I was waiting to find out how it went....

Looks like the decision on when she has to be operated on has been taken out of your hands... Lets just hope for a perfect doner ASAP. Fingers crossed.

makeitfit · 03-04-2014, 23:28

Aye, best found sooner than later for all concerned.
Fingers crossed mate

solarman216 · 03-04-2014, 23:39

Feel for you, best of luck, Rick

AlexD333 · 04-04-2014, 06:11

Quote:

Originally Posted by Lazy-Ferret

I was waiting to find out how it went....

Looks like the decision on when she has to be operated on has been taken out of your hands... Lets just hope for a perfect doner ASAP. Fingers crossed.

Plus one on this!

Wishing you the best of luck

Bigbunny2007 · 04-04-2014, 21:13

Stay positive and the best of luck to your daughter and family

exosteve · 04-04-2014, 21:26

this is a perfect plug spot.

please everyone on here and please encourage your friends too.
get online and join the donor list.
its easy just register online and donate the bits your not going to need anymore.
im on the list for all spares exept my eyes. what my eyes have seen stay mine I belive its a gate way to your soul.

they can have the rest but my liver may not be too usefull with the abuse its had.

but come on peeps save some ones life,join the list.
with new technologie today as soon as we go they know they can save some bits just by typing your name in the list.

I am going to encourage my hole family join

keep us upto date steve and I look forward to meeting you all in june

R1cho · 04-04-2014, 22:00

Quote:

Originally Posted by exosteve

this is a perfect plug spot.

please everyone on here and please encourage your friends too.
get online and join the donor list.
its easy just register online and donate the bits your not going to need anymore.
im on the list for all spares exept my eyes. what my eyes have seen stay mine I belive its a gate way to your soul.

they can have the rest but my liver may not be too usefull with the abuse its had.

but come on peeps save some ones life,join the list.
with new technologie today as soon as we go they know they can save some bits just by typing your name in the list.

I am going to encourage my hole family join

keep us upto date steve and I look forward to meeting you all in june

its funny you should say that m8y, in wales they are bringing in an opt out system next year, so if you don't opt out you automatically become a donor when you die.

thankyou everyone for your well wishes, we think it would be better for her to have it done now while she's young as her recovery time will be a lot quicker, the operation can take 8hrs and then weeks in the hospital after for recovery, also the hospital are putting a claim in for us for disbility living thingy for robynn, its something we have never thought of but if we do get it the extra money will help with the extra visits to birmingham and in between those visits we have to goto cardiff, so now i have a mission to get the truck in tip top condition ready for when the day arrives

Barrbeast · 04-04-2014, 22:38

As said bud, fingers crossed, will be thinking of you all.

solarman216 · 04-04-2014, 22:43

Difficult subject this as religion seems to come in to it, so I will just state what I think, once you re dead you have no need of your body so I say put it up for those that need any bits that are useful, I cannot see whatever religion you are that this would make any difference, your body is just a husk that is now gone spirits and all that malarkey I leave to you all, Rick

firebobby · 04-04-2014, 22:59

Quote:

Originally Posted by solarman216

Difficult subject this as religion seems to come in to it, so I will just state what I think, once you re dead you have no need of your body so I say put it up for those that need any bits that are useful, I cannot see whatever religion you are that this would make any difference, your body is just a husk that is now gone spirits and all that malarkey I leave to you all, Rick

Totally agree

R1cho · 30-04-2014, 00:04

well we had the blood results back today and it doesn't look like the steroids are working, just have to wait to hear from the liver specialist in birmingham now

bry · 30-04-2014, 08:30

Yeah best of luck,its a heart wrenching time when one of your kids are ill.No matter how old they are.
As for donating bits of your body when its of no use to you.(Bit like recycling a old truck,to keep another going)

Lazy-Ferret · 30-04-2014, 09:41

Quote:

Originally Posted by R1cho

well we had the blood results back today and it doesn't look like the steroids are working, just have to wait to hear from the liver specialist in birmingham now

You did say you were not convinced that they were working and she was looking a bit yellow the day we saw you.

We will keep our fingers crossed that it all goes smoothly, and she gets exactly what she needs asap.

Best wishes to you all.

Terranical · 30-04-2014, 10:09

Thoughts are with you bud, just keep positive! Re the "opt-out" scheme, should be rolled out across the country - I totally agree with Ricks' sentiments, when we're gone our bodies are of no use to us, so it seems criminal that the parts that could save other peoples' lives are simply buried or cremated.

03-04-2014, 23:06	#1
R1cho Senior Member Join Date: Aug 2010 Location: Wales Vehicle: 1997 LandCruiser Colorado Posts: 4,201	My Baby Girl - Update well we went to birmingham today and we saw robynns liver specialist, he is concerned about how jaundiced she is, so they are starting her on a course of steroids, in 2 weeks she will have some blood tests and if things haven't improved we have to go back to birmingham to discuss a liver transplant, if there is improvement she will continue on the steroids for 2 months and we will see where it goes from there either way we think a transplant will be sometime soon

03-04-2014, 23:39	#4
solarman216 Off road maniac Join Date: Dec 2009 Location: Bexhill on Sea Vehicle: Y60 Patrol Me, 3 ltr Mrs Posts: 17,430	R Feel for you, best of luck, Rick __________________ Ex banger racer now off road maniac Lokka on the front with manual hubs Diff lock on rear 3 inch SS straight through exhaust Manly winch bumper with 13000 lb winch 10 spike ground anchor, with multiple straps and blocks Super strong body cills capped with scaffold pole 20% stronger springs all round aggressive off road tyres on wheels so just swap. Aim to get stuck and be completely self sufficient in extraction, love getting muddy, 2ft deep is good but rare.

04-04-2014, 22:43	#10
solarman216 Off road maniac Join Date: Dec 2009 Location: Bexhill on Sea Vehicle: Y60 Patrol Me, 3 ltr Mrs Posts: 17,430	Difficult subject this as religion seems to come in to it, so I will just state what I think, once you re dead you have no need of your body so I say put it up for those that need any bits that are useful, I cannot see whatever religion you are that this would make any difference, your body is just a husk that is now gone spirits and all that malarkey I leave to you all, Rick __________________ Ex banger racer now off road maniac Lokka on the front with manual hubs Diff lock on rear 3 inch SS straight through exhaust Manly winch bumper with 13000 lb winch 10 spike ground anchor, with multiple straps and blocks Super strong body cills capped with scaffold pole 20% stronger springs all round aggressive off road tyres on wheels so just swap. Aim to get stuck and be completely self sufficient in extraction, love getting muddy, 2ft deep is good but rare.

03-04-2014, 23:21	#2
Lazy-Ferret Senior Member Join Date: Jun 2012 Location: Sevenoaks, Kent Vehicle: Terrano 2.7TDi SE Touring Posts: 5,221	I was waiting to find out how it went.... Looks like the decision on when she has to be operated on has been taken out of your hands... Lets just hope for a perfect doner ASAP. Fingers crossed.

03-04-2014, 23:28	#3
makeitfit Senior Member Join Date: Apr 2008 Location: on the beach WEST WALES Vehicle: Maverick TDi BLACK mmm Posts: 15,136	Aye, best found sooner than later for all concerned. Fingers crossed mate

04-04-2014, 21:13	#6
Bigbunny2007 Senior Member Join Date: Feb 2013 Location: Yorkshire Vehicle: T2 swb 2.7 tdi - Disco 3 Posts: 589	Stay positive and the best of luck to your daughter and family

04-04-2014, 21:26	#7
exosteve Senior Member Join Date: Dec 2012 Location: stoke on trent Vehicle: 2001 2.7 td lwb terrano Posts: 2,740	this is a perfect plug spot. please everyone on here and please encourage your friends too. get online and join the donor list. its easy just register online and donate the bits your not going to need anymore. im on the list for all spares exept my eyes. what my eyes have seen stay mine I belive its a gate way to your soul. they can have the rest but my liver may not be too usefull with the abuse its had. but come on peeps save some ones life,join the list. with new technologie today as soon as we go they know they can save some bits just by typing your name in the list. I am going to encourage my hole family join keep us upto date steve and I look forward to meeting you all in june

04-04-2014, 22:38	#9
Barrbeast Senior Member Join Date: Mar 2013 Location: Dundee, Scotland Vehicle: 1990 4.2 SWB Safari Posts: 2,615	As said bud, fingers crossed, will be thinking of you all.

30-04-2014, 00:04	#12
R1cho Senior Member Join Date: Aug 2010 Location: Wales Vehicle: 1997 LandCruiser Colorado Posts: 4,201	well we had the blood results back today and it doesn't look like the steroids are working, just have to wait to hear from the liver specialist in birmingham now

30-04-2014, 08:30	#13
bry Senior Member Join Date: May 2013 Location: South Yorkshire.. Vehicle: Nissan Terrano MK 2 SE Posts: 1,757	Yeah best of luck,its a heart wrenching time when one of your kids are ill.No matter how old they are. As for donating bits of your body when its of no use to you.(Bit like recycling a old truck,to keep another going)

30-04-2014, 10:09	#15
Terranical Senior Member Join Date: Jun 2010 Location: Resident in Bristol, Terrano in Spain Vehicle: 1994 Terrano 2.7TD SWB Posts: 1,398	Thoughts are with you bud, just keep positive! Re the "opt-out" scheme, should be rolled out across the country - I totally agree with Ricks' sentiments, when we're gone our bodies are of no use to us, so it seems criminal that the parts that could save other peoples' lives are simply buried or cremated.